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The Journey of Being Remembered: Legacy & Memory Making for Children, Families & Care (Webinar $149)
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The Journey of Being Remembered: Legacy & Memory Making for Children, Families & Care (Webinar $149)
The Journey of Being Remembered: Legacy & Memory Making for Children, Families & Care (Webinar $149)

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When: Access Live or On-Demand
12:00 - 1:30 PM Arizona
Where: Webinar
United States

Phone: (406) 442-2585


For More Info or to Register, click here.

Available as a live or on-demand webinar.  
AHPCO Members enjoy a $200 discount on the pricing.



The Journey of Being Remembered: Legacy & Memory Making for Children, Families & Caregivers (Webinar &149*)

The death of a child, whether expected or unexpected, is a complicated emotional experience for the child, family, and healthcare team.  The pediatric interdisciplinary team has the privilege of being involved in end-of-life care for children and their families to provide expert, compassionate care during this life transition.

Death does not erase a life or a memory.  One lasting gift that can be given to a dying child and the family is the gift of being remembered.  This webinar’s presenters have extensive experience in helping children create their legacy and the imprint they want to leave upon their families, friends, and communities before they die.  They will share stories and creative ways they have facilitated legacy-making experiences for patients, siblings, families, and care providers.  The goal is to provide participants with applicable concepts, tools, and care-delivery models that can be used in their organizations to facilitate providing expert, compassionate end-of-life care.


  • Provide an overview of loss, mourning, and grief through the eyes of the patient, parents, siblings, grandparents, and care-giving team
  • Describe how to develop an interdisciplinary plan of care that addresses the physical, psychological, social, spiritual, and cultural needs of the dying child and family
  • Identify at least three interventions that can be incorporated into the plan of care to facilitate the legacy-making process
  • Address the Child Life Specialist’s role and the impact of expressive therapies in end-of-life care
  • Describe at least two ways to support the grieving care team and promote legacy/memory opportunities for care providers



  • Insightful ways to incorporate effective, meaningful communication in end-of-life care
  • Anticipatory guidance: how to foster legacy and memory making for the dying child throughout the trajectory of the illness, not only during the final hours
  • How to facilitate memory making for siblings, families, and friends/community
  • Care at the time of death:  understand the concept of “the art of being present”
  • Incorporating complementary and expressive therapies into end-of-life care
  • Community support and opportunities to ease the burden and foster memories for families experiencing the loss of a child

Take-Away Tool Kit 

  • Resource list, including books to be used with children and families at the end of life
  • List of legacy-building activities
  • “Must have” list of resources to keep onsite in the case of an unexpected death


Who Should Attend

This session is best suited for those who want to expand their knowledge and ability to care for children and families on the unexpected, emotional end-of-life journey.  The discussion and content will be guided by insight and expertise from all disciplines that impact dying children and families.  This program is recommended for those seeking insight on a creative, holistic team approach to pediatric end-of-life care including MDs, NPs, RNs, therapists, child-life specialists, creative arts therapists, social workers, chaplains, volunteers, and nursing assistants.



Jill Wegener, MSN, RN, CCRN, Blythedale Children's Hospital
Jill Wegener is the Chief Nursing Officer at Blythedale Children’s Hospital in Valhalla, NY. She has over 30 years’ experience in pediatric and neonatal critical care nursing, caring for a broad range of patients in the pediatric intensive care unit, pediatric department, air/land transport, and home care settings. Jill obtained an RN from Albany Medical Center School of Nursing, a BSN from SUNY Institute of Technology at Utica/Rome, and an MSN in Health Administration from Long Island University. She has been lecturing about pediatric end-of-life care for over 20 years.


Kelsey Mayer, M.S., CCLS, Blythedale Children’s Hospital
Kelsey Mayer serves as Director of Therapeutic and Developmental Support Services at Blythedale Children’s Hospital. Kelsey earned her bachelor’s degree in Child and Family Studies from SUNY Oneonta and continued on to receive her master’s degree in Child Life from Bank Street College of Education. Kelsey is certified through the Association of Child Life Professionals and is a member of the Child Life of Greater New York organization. Kelsey also holds specialized training in other areas such as infant massage, Reiki, brain injury and bereavement.


Jessica Dadigan, MS, CCLS, CBIS, Blythedale Children’s Hospital
Jessica Dadigan is the Senior Child Life Specialist and Child Life Internship and Volunteer Coordinator at Blythedale Children’s Hospital. She completed her undergraduate studies at Syracuse University and her Master’s in Child Life from Bank Street College of Education. Jessica became full-time at Blythedale on the Adolescent and Traumatic BrainI njury unit in 2012 and has since transitioned to assume the role of Primary Specialist on the Infant and Toddler Unit. She has unique experiences working within a palliative care approach in a pediatric rehabilitation setting after completing her Coordinator Role in the Resolve Through Sharing (RTS) Bereavement Training in Neonatal and Pediatric Death in 2016, in addition to having advanced brain injury training as a Certified Brain Injury Specialist.


   AHPCO Members
 Live Version or Archived** Version  $149
 Both Live and Recorded  $179

Non-Members add $200 to the above pricing.  Not a Member? Join Today!

**The archived version is a recording of the live webinar, including audio, visuals, and handouts. Includes the presenter’s email address for questions. The Archived Version is available 1 week after the Live Webinar and expires 6 months after the live program date.



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